Uplifting news...

I got a call from our BSC last evening.  She told me that Ryan is doing great in school!  She said she expects Ryan to be without a TSS by the end of the year!  This is such good news and I am so pleased.  All of our hard work is paying off.

I can breathe...

So two weeks ago, we decided to take a break from having a home TSS.  We were nervous about it, but with Ryan being in school all day, we felt he was getting a good dose of structure, so we took a chance.  So far so good.  It is really nice not to have anyone in our home.  I think Ryan is doing well, and I think our family is doing better without the added interference of having someone in our home.  We are going to give it time, and we will see what happens, but so far, so good.

Feels like we are breaking up..

We had a big meeting last evening.  Chris and I met with our TSS and BSC.  Our TSS basically said she no longer felt like she was being effective, and was frank when she said it was in large part because of my lack of follow through.  She will continue his school hours, but will no longer be coming to the house to do his home hours.  Wow, feel like I have been kicked in the gut and broken up with!  I knew that I needed a break from having my house invaded by therapists, but I thought I would be asking for the break, not having the therapist walking out on us.  I

 understand where she is coming from, it just sucks.  Now we have to decided weather to have another therapist come into the home to do Ryan's home hours or to take on the home issues ourselves.  Ryan's home issues are few and far between.  He is a good little boy and the issues we have most often are compliance, which is manageable.  I don't want him to suffer because we are upset...I feel selfish for wanting to rid our lives of therapists in the home, but I do wonder if he really needs them at home???  They cut, color, do worksheets and talk, but he gets so much at school that I don't see how home hours are really a huge benefit to him.  We are taking few days to really think about what is best for Ryan and best for our family...I guess we will see what the next few days brings.

The Invasion...

I won't lie to you...one of the most stressful things that you will deal with when having an autistic child is the invasion of therapists into your home. I say that like it's a bad thing, and it's not, afterall these therapists are in your home to help your child. When we started this journey a while back, I never imagined the stress and frustration would come from having your home filled with another person or two on a regular basis. It is one thing to deal with all the complications of life that a normal family has to deal with, but then you add another person into the mix, it sucks. I owe a lot to our therapists, and they are wonderful and caring people, but I can not wait to have my home back. Having your house pulled together and being on your best behavior while they are there is a job in itself. I promise to have a party someday when this is all over and we no longer need to have home services...and you are all invited!